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Homocystinuria and Organic Acidemias
Status
Closed
Closed Funds
This fund is temporarily closed to new patients due to lack of sufficient funding. Please continue to visit our Disease Funds page often, as replenished funds reopen as quickly as possible. If you currently have a grant with HealthWell, your grant will remain active for the entire 12 month grant cycle or until you have exhausted your allocated grant amount, whichever comes first. You can continue to use your pharmacy card or submit requests for reimbursements during your designated grant cycle.
Fund Type
CopayPremium (Medicare Part B only)
Maximum Award Level
Pharmacy Card Fund
YesMinimum CopayReimbursement Amount
Minimum Copay Reimbursement Amount
We encourage you to please use your HealthWell pharmacy card for any applicable charges as possible.
Minimum Premium
Reimbursement Amount
Household Income Limit
500% of the Federal Poverty Level(adjusted for household size and high
cost of living areas)
Treatments Covered
- Ammonul
- Arginine (non Otc)
- Betaine
- Biotin (non Otc)
- Buphenyl
- Carbaglu
- Carglumic Acid
- Carnitor
- Citrulline (non Otc)
- Citrulline Easy
- Cyanocobalamin (b12) (non Otc)
- Cyanokit (non Otc)
- Cystadane (non Otc)
- Dextrose (non Otc)
- Fabb (non Otc)
- Flagyl 375
- Folbee (non Otc)
- Folbic (non Otc)
- Folic Acid (b6 And B12) (non Otc)
- Foltx (non Otc)
- Glycine (non Otc)
- Hydroxocobalamin (b12)
- L-citrulline
- Levocarnitine (non Otc)
- Metrocream
- Metrogel
- Metronidazole Avpak
- Metronidazole Novaplus
- Metronidazole
- Noritate
- Nuvessa
- Pyridoxine (b6) (non-otc)
- Rifaximin
- Rosadan
- Rosadan Gel
- Sodium Benzoate
- Sodium Benzoate/sodium Phenylacetate
- Sodium Phenylacetate
- Sodium Phenylbutarate
- Vandazole
- Xifaxan
Fund Definition
Assistance with the prescription drugs and biologics used in the treatment of homocystinuria and organic acidemias.
Grant Utilization
HealthWell estimates that patients use an average of $3,720 during their 12-month grant period for this disease area.
Do I Qualify?
HealthWell bases eligibility on an individual’s medical, financial and insurance situation. To qualify for HealthWell’s assistance, applicants must meet the following eligibility requirements:
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Please make sure that HealthWell currently has a fund for your diagnosis/indication and that your medication is covered under that fund by visiting our Disease Funds listing. If we do not have a fund that currently covers your diagnosis, please check back as we frequently open and reopen programs as funding becomes available. The Foundation is able to help patients receiving treatment for indications for which we currently have an open fund. We can only assist with medications that have been prescribed to treat the disease/covered diagnosis. You will be asked to provide the Foundation with the patient’s diagnosis, which must be verified by a physician, nurse practitioner, or physician assistant’s signature. The patient must receive treatment in the United States.
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To qualify for copayment assistance from HealthWell, you must have some form of health insurance (private insurance, Medicare, Medicaid, TriCare, etc.) that covers part of the cost of your treatment. Please note that in order to qualify for premium assistance through this fund, you must have Medicare Part B. The Foundation will refer patients without prescription insurance to other programs, such as manufacturer patient assistance programs.
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HealthWell assists individuals with incomes up to 300-500% of the Federal Poverty Level. The Foundation also considers the number in a household and cost of living in a particular city or state. If you believe you qualify for assistance, you may begin the application process here.
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If you are receiving treatment in the U.S. and have met the eligibility criteria as listed, you are ready to apply! Please note that you will be asked to provide a Social Security Number in order to create a grant. This information is gathered to eliminate duplicate applications and is kept secure and confidential.
About Homocystinuria
Homocystinuria is elevation of the amino acid, homocysteine (a protein building block), in the urine or blood. Acquired forms of elevated homocysteine are usually due to lack of vitamins B6 (pyridoxine), B9 (folate), or B12 in one’s diet or the inability of the stomach to absorb the vitamins. Source: HCU Network America
About Organic Acidemias
Organic acidemias are a group of inheritable genetic metabolic disorders in which there is a defect in protein metabolism where an essential enzyme is absent or malfunctioning. This defect results in a buildup of chemicals, in this case usually acids, on one side of the metabolic blockage and a deficiency of vital chemicals on the other. This causes an overdosage of one chemical (often toxic) and the shortage of another which is essential to normal body functioning.
The effect of the disorder will depend upon the age at which symptoms occur. Children with less severe forms of the conditions develop symptoms later. Characteristics of the conditions include general malaise, reluctance to feed, breathing problems, vomiting, hypotonia (floppiness) and/or spasticity (stiffness). Early detection and treatment can greatly mitigate the effects of the disorder. Source: Organic Acidemia Association
Additional Educational Resources
You may also visit our Resource List to view other copayment organizations that may provide assistance.
